Episode 37

The Caregiver Who Sparked a Movement

with Andrea Wilson Woods
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The Caregiver Who Sparked a Movement

How do you turn unbearable loss into lasting impact?

Andrea Wilson Woods, patient advocate, speaker, and founder of Blue Fairy: The Adrienne Wilson Liver Cancer Association, shares the powerful legacy of her sister Adrienne’s book, I’d Rather Be Dead Than Deaf: A Young Woman’s Journey with Liver Cancer. What began as one young woman’s journal became a voice for thousands facing hepatocellular carcinoma (HCC)—one of the world’s deadliest yet most preventable cancers.

As Adrienne’s guardian and caregiver, Andrea faced a system unprepared to support young adults with cancer. Out of that heartbreak came Blue Fairy, now a national nonprofit providing education, advocacy, and emotional support for HCC patients and their families. Andrea explains how today’s targeted and immunotherapies are changing outcomes, why patient stories matter, and how caregivers can stay organized and hopeful through chaos.

This episode is a tribute to Adrienne’s courage and to every family walking the same path. It’s a reminder that even in the hardest moments, advocacy, love, and education can create real change—and that hope always has another chapter.

Highlights:

00:42 – The story behind I’d Rather Be Dead Than Deaf
Hear how Adrienne Wilson’s journals became a powerful book that gives a voice to young adults facing liver cancer.

02:15 – Why Andrea founded Blue Fairy
Learn how one sister’s loss inspired a national nonprofit that now educates, advocates, and supports HCC patients and families.

04:12 – Understanding hepatocellular carcinoma (HCC)
Discover what makes HCC one of the deadliest cancers—and why prevention and early screening are key.

06:45 – Today’s breakthroughs in liver cancer treatment
Andrea explains how targeted therapies and immunotherapies are improving both survival and quality of life.

09:03 – A caregiver’s turning point
Find out how Andrea went from feeling powerless to becoming her sister’s strongest advocate and a voice for others.

11:20 – The Blue Fairy approach to advocacy
See how education, storytelling, and community support drive real change in awareness and policy.

13:47 – Caregiver tools that make a difference
Learn Andrea’s practical “binder system” for keeping records, test results, and notes organized through treatment.

16:02 – Palliative care vs. hospice—knowing the difference
Hear Andrea’s clear explanation of these two terms and how each can improve quality of life at different stages.

18:25 – Why stories save lives
Understand how personal stories like Adrienne’s can move doctors, influence research, and inspire others to seek help sooner.

21:05 – Finding hope after loss
Andrea shares what healing looks like after grief—and how Blue Fairy continues Adrienne’s legacy through education and compassion.

Mentioned Resources:

CanCare- www.cancare.org

Book – www.cancare.org/hopebook

Blue Farey - https://www.bluefaery.org/

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About the Guest:

Andrea Wilson Woods is the founder and president of Blue Faery: The Adrienne Wilson Liver Cancer Association, a nonprofit she created in memory of her sister Adrienne. A cancer caregiver, patient advocate, speaker, podcaster, and award-winning author, Andrea has turned personal loss into a mission of hope, empowering families facing liver cancer through awareness, education, and support.

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Ep 43

Nursing Dean’s Hope After Cancer

with Dr. Lorraine Frazier
What happens when the person shaping future nurses suddenly becomes the patient? Dr. Lorraine Frazier, Dean of the Columbia University School of Nursing and a nationally respected nursing leader, joins Darcie Wells to share how a 2022 breast cancer diagnosis transformed her life and leadership. With decades of experience in nursing education, research, and evidence-based practice, Dr. Frazier brings a rare perspective shaped by both professional expertise and lived experience as a survivor. Her journey into nursing began at age eleven while caring for a chronically ill father. That early exposure taught her how deeply families experience illness and how much compassionate communication matters. Years later, cancer placed her on the other side of care, revealing how easily patients can feel unseen during moments that are anything but routine. Dr. Frazier reflects on the power of human connection, presence, and being truly heard. She shares how small gestures can change everything for someone facing treatment. She also explains how lifestyle changes, movement, nutrition, faith, and stress management became essential tools in her healing. Today, she feels healthier than ever and more grounded in what matters most. Her story reminds listeners that healthcare is not only about science. It is about humanity. Hope grows when people walk alongside one another, especially in the moments that feel most uncertain. Highlights: • Why a patient’s “first day” is never routine, even when it feels ordinary to providers • How evidence-based care and human connection must work together • What breast cancer taught a nursing leader about presence and touch • How small daily choices can support healing and long-term health • Why sharing your story can become a lifeline for someone else Mentioned Resources: CanCare- www.cancare.org Book – www.cancare.org/hopebook About the Guest: Dr. Lorraine Frazier is the Dean of the Columbia University School of Nursing, a nationally respected healthcare leader, and a breast cancer survivor. Since 2018, she has led one of the nation’s premier nursing programs with a vision rooted in equity and compassion. In 2022, her work became deeply personal when she was diagnosed with breast cancer. Her journey through treatment strengthened her commitment to patient-centered care and advocacy. She now brings both leadership and lived experience to her role on the CanCare Board of Directors, supporting others on a path she knows firsthand.
Ep 42

A Caregiver’s Guide to Grief, Healing, and Hope

with Christina Napoleon
What happens when caregiving, grief, and love all collide at once? Christina Napoleon is a number one bestselling author, certified grief educator, keynote speaker, and the world’s leading positive widow coach. After caring for her husband through a five-year terminal cancer journey while raising their young daughter, Christina faced widowhood, solo parenting, and profound loss with little support that truly understood spousal grief. Her turning point came when she realized that many grief spaces focused only on loss, not on how to live after it. Through her own healing, Christina began creating the tools she wished had existed during her darkest days. From understanding anticipatory grief and widow's fog to redefining self-care for caregivers, she transformed pain into purpose. In this moving conversation, Christina shares what caregiving truly demands, why self-care is not selfish, and how grief impacts the body, memory, and identity. She explains how small, compassionate practices can restore steadiness and how community becomes a lifeline after loss. Her story offers validation for caregivers, widows, and anyone navigating grief while still showing up for others. This episode serves as a reminder that love is profound, healing is not a linear process, and hope can return, gently, one breath at a time. 5 Key Highlights How anticipatory grief begins at diagnosis, not loss, and why that matters Why caregivers often lose themselves and how to begin reclaiming strength What widow's fog looks like physically, emotionally, and mentally How honest language helps children process illness and loss Why community and shared understanding are essential to healing Mentioned Resources: CanCare- www.cancare.org Book – www.cancare.org/hopebook Christina's book website – www.thepositivewidow.com‍About the Guest: Christina Napoleon is a #1 bestselling author, keynote speaker, certified grief educator, and the world’s leading Positive Widow coach. After caring for her husband through a five-year journey with terminal cancer while raising their young daughter, Christina emerged from profound loss to create the support she could not find. Through soul-centered tools, compassionate guidance, and community, she helps widows move through grief with gentleness and rediscover hope. Her book, The Positive Widow, and her private online community offer comfort, connection, and healing to women navigating life after loss. Christine is offering a free gift to our community:Email thepositivewidow@outlook.com to receive: • A Financial Reference Sheet After Loss • Hopeful Morning & Peaceful Evening Soulmaps, gentle checklists especially helpful for caregivers
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